Pediatric Quality of Life and Indefinite Medical Technology

Institute for Bioethics Seminar Renee Boss, MD, MHS Rembrandt Foundation Professor of Pediatric Palliative Care Professor, Division of Neonatology Berman Institute of Bioethics Johns Hopkins School of Medicine A growing population of children are surviving once-fatal conditions yet need indefinite medical technology for vital functions like breathing and feeding. Most children cannot participate in these decisions. How should their quality of life be assessed, and whose perspectives matter? Sponsored by the Institute for Bioethics